Effect of Instructional Guidelines on Mothers’ knowledge, Practice and Lifestyle of their Children with Phenylketonuria | ||
| Assiut Scientific Nursing Journal | ||
| Article 1, Volume 10, Issue 31, July 2022, Pages 1-14 PDF (976.75 K) | ||
| Document Type: Original Article | ||
| DOI: 10.21608/asnj.2022.136589.1376 | ||
| Authors | ||
| Donia Elsaid Fathi Zaghamir1; Shadia Abd Elmoniem Syan2; Manal Mohamed Ahmed Ayed* 3; Hala Samir Ahmed El-husseiny4; Wafaa Hamed Kamal Elshafie5; Fatma Mohamed Amin6 | ||
| 1Lecturer of Pediatric Nursing Department, Faculty of Nursing, PortSaid University, Egypt | ||
| 2Lecturer of Pediatric Nursing Department, Faculty of Nursing, Sohag University, Egypt | ||
| 3Assistant Professor of Pediatric Nursing Department, Faculty of Nursing, Sohag University, Egypt | ||
| 4Lecturer of Pediatric Nursing Department, Faculty of Nursing, Damietta University, Egypt | ||
| 5Lecturer of Community Health Nursing Department, Faculty of Nursing, Mansoura University | ||
| 6Assistant Professor of Pediatric Nursing Department, Faculty of Nursing, Mansoura University, Egypt | ||
| Abstract | ||
| Background: Phenylketonuria is an autosomal recessive condition in which phenylalanine accumulates in the blood and bodily fluids due to a lack of Phehydroxylase activity. The study aimed to evaluate the effect of instructional guidelines on mothers’ knowledge, practice and lifestyle of their children with phenylketonuria. Design: A quasi-experimental research design was utilized to achieve the study's aim. Setting: The study was conducted at genetic counseling clinic in the basic health care unit at Sohag City affiliated to the Ministry of Health (MOH). Sample: A purposive sample included 100 mothers accompanied by their children with Phenylketonuria. Tools: Two tools were used: Tool I: Mothers’ knowledge and reported practice regarding phenylketonuria: a structured interview questionnaire was utilized and Tool II: Children’s lifestyle assessment questionnaire. Results: The study revealed that there was a statistically significant improvement in post-intervention mothers' knowledge and reported practices and their children's lifestyle with phenylketonuria than pre-intervention. A statistically significant correlation detected between compliance with the prescribed diet and growth problems. No statistically significant correlation found between compliance with the prescribed diet and sleep problems. Conclusion: The study concluded that the instructional guidelines were effective in improving mothers' knowledge, reported practice, and their children's lifestyle with phenylketonuria. Recommendations: Health education program for mothers should be provided to increase their knowledge and reported practices about phenylketonuria, as well as identify the importance of a prescribed diet for children with this condition. | ||
| Keywords | ||
| Children; Knowledge; Practice; lifestyle; Mothers & Phenylketonuria | ||
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