Effect of Structured Education Booklet on Self-efficacy, Self-care practices and Health-Related Quality of Life in Adults with Sickle Cell Disease | ||||
| Assiut Scientific Nursing Journal | ||||
| Article 28, Volume 12, Issue 46 - Serial Number 1, September 2024, Page 293-305 PDF (984.84 K) | ||||
| Document Type: Original Research | ||||
| DOI: 10.21608/asnj.2024.315472.1893 | ||||
 View on SCiNiTO | ||||
| Authors | ||||
Manal Sayed Atya   1; Ghada Thabet Mohammed2; Sawsan M.Moeen 3; Ghada Hassan Ahmed 4
| ||||
| 1Lecturer of Medical Surgical Nursing, Faculty of Nursing, Assiut University, Egypt | ||||
| 2Assistant Consultant of Medical Surgical Nursing, Assiut University Hospitals, Assiut University, Egypt. | ||||
| 3Associate Professor of Internal Medicine, Clinical Hematology, Faculty of Medicine, Assiut University, Egypt | ||||
| 4Assistant Professor of Medical Surgical Nursing, Faculty of Nursing, Assiut University, Egypt. | ||||
| Abstract | ||||
| Background: Sickle Cell Disease (SCD) is a chronic disorder that has an impact on a patient’s quality of life. A structured education booklet has the potential to affect self-efficacy, self-care practices and subsequently better quality of life. Aim: To investigate the effect of structured education booklet on self-efficacy, self-care practices and health related quality of life in adult patients with sickle cell disease.Design: Pre experimental one group (pretest-posttest) design. Top of FormBottom of FormSetting: Inpatient and outpatient clinic, Clinical Hematology Unit, Department of Internal Medicine Assiut University Hospital. Study subjects: Purposive sample of forty adult patients with sickle cell disease of both sexes were included in the study and followed up for 3 months. Data collection tools: (I) structured interviewing questionnaire, (II)Sickle Cell Self-Efficacy Scale, (III) Self-care practices assessment sheet (a-Jeanerette Self-care Assessment Tool, b-The 24-item Appraisal of Self-care Agency Scale) and (IV)Adult Sickle Cell Quality of Life Measurement Information System. Results: The mean score of self-efficacy (14.25±2.78Vs.30.22±3.37), self-care practices measured as self-care actions (20.2±1.4Vs. 27.55±1.65), perceived self-care ability (65.9±4.1 Vs. 97.25±11.3), and health-related quality of life improved significantly when compared to the pre-structured education (p < 0.001**). Conclusion: Structured education booklet improved patient’s self-efficacy, self-care practices, hence improving QOL in SCD patients. Recommendation: The study findings underscore the significance of implementing structured education booklet as an integral component of management of individuals with sickle cell disease as a means of enhancing self-efficacy, care practices and health-related quality of life. | ||||
| Keywords | ||||
| Health-Related Quality of Life; Self-care practices; Self-efficacy; Sickle Cell Disease & Structured education booklet | ||||
|
Statistics Article View: 213 PDF Download: 177 |
||||
