Quality of Life of Mothers Having Children with Autism Spectrum Disorder | ||
| Alexandria Scientific Nursing Journal | ||
| Volume 27, Issue 1, March 2025, Pages 109-122 PDF (287.8 K) | ||
| Document Type: Research articles | ||
| DOI: 10.21608/asalexu.2025.414958 | ||
| Authors | ||
| Nagwa Ibrahim Mohamed , Hamad1; Samah Galal Hamed , Bakry2; Omnia Galal Waziry , Moawad3 | ||
| 1Assistant professor Pediatric Nursing Department, Faculty of Nursing, Alexandria University | ||
| 2Nurse Supervisor El- Alanfoshy Pediatrics Hospital, Health Affairs Directorate – Alexandria | ||
| 3Professor Pediatric Nursing Department, Faculty of Nursing, Alexandria University | ||
| Abstract | ||
| Background: mothering children with autism spectrum disorder (ASD) is widely identified to be associated with life-long stressors and challenges that negatively impact the Quality of Life (QOL) of parents. The study aimed to assess the quality of life of mothers having children with autism spectrum disorder. Settings: The study was conducted in the Outpatient Psychiatric and Neurological Clinics of both the Main University Hospital and Smouha Specialized University Hospital in Alexandria. Subjects: A convenient sample of 100 mothers who have children with ASD comprised the study subjects. Tools: Two tools were used to collect the necessary data; namely, Characteristics of Mothers and their Children with ASD Structured Interview Schedule and Pediatric Quality of Life Inventory ™: Family Impact Module. Results: the overall parent functioning was low among 46% of mothers and moderate among 52% of them. Moreover, the overall family functioning was low among 64% of mothers. Generally, the overall QOL was low among 54% of mothers whereas 46% had a moderate level. Conclusion: It can be concluded that mothers of children with ASD are at high risk for impaired QOL across multiple domains of their lives. Accordingly, the overall QOL was low among more than half of mothers with the remaining showing moderate levels. Recommendations: A coordinated effort between governmental and non-governmental organizations is essential for providing support for families having ASD children. This collaboration should prioritize providing financial assistance and social support services, particularly for low-income and underserved communities. | ||
| Keywords | ||
| Autism Spectrum Disorder; Children; Mothers; Quality of Life | ||
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