The Effects of Coping Strategies Intervention on Strain and Quality of Life among Mothers of Children with Phenylketonuria | ||||
| Egyptian Journal of Health Care | ||||
| Volume 16, Issue 1, March 2025, Page 946-962 PDF (388.24 K) | ||||
| Document Type: Original Article | ||||
| DOI: 10.21608/ejhc.2025.422592 | ||||
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| Authors | ||||
| Fatma A. Eiz - Elregal1; Aml Reda Mohamed Ebrahem Mansy2; Enaam Abd-El latif Farrag Hamza3; Mayada Taha Mahmoud Sabea4 | ||||
| 1Assistant Prof of Community Health Nursing, Faculty of Nursing (for girls)-Al-Azhar University, Egypt. | ||||
| 2Lecturer of Pediatric Nursing, Faculty of Nursing- Mansoura University, Egypt. | ||||
| 3Assistant Prof of Psychiatric Mental Health Nursing, Faculty of Nursing, - Fayoum University, Egypt. | ||||
| 4Assistant Prof of Community Health Nursing, Faculty of Nursing, Helwan University, Egypt. | ||||
| Abstract | ||||
| Background: Phenylketonuria is often called PKU. Mothers face multiple problems because they are playing a vital role in caring for sick children for long time, thus helping decreasing strain and promoting health for maintain their wellbeing. Aim: This study aimed to evaluate the effects of coping strategies intervention on strain and quality of life among mothers of children with phenylketonuria. Method: a quasi-experimental design was conducted in out-patient clinics and genetics department affiliated to Mansoura University Children’s Hospital (MUCH), involving 48 mothers of children diagnosed with phenylketonuria. Data were collected using a structured interviewing questionnaire sheet, mother knowledge about PKU, Coping Inventory for Stressful Situation (CISS), Modified Caregiver Strain Index (MCSI) and the WHO Quality of Life-BREF (WHOQOL-BREF). Results: The current study reveals that enhancing coping strategies after applying the study intervention. The mean of mothers 'coping strategies in posttest was higher than in the pretest (193.43 ± 9.26 & 79.8±7.2respectively) with a statistically significant difference between the two-study intervention. Also, there was a highly statistically significant negative correlation between pre- and post- coping score and strain level (r=-0.298, p<0/001; r=-0.401, p<0.001) and between pre and post quality of life and strain level among mothers having children with PKU (r=-0.234, p<0.001; r=-0.352, p<0.001) and the positive correlation between coping and QOL pre and post intervention (r=0.332, p<0.001; r=0.463, p<0.001). Conclusion: The study concluded that, coping strategies intervention had a positive effect on reducing strain and improving quality of life among mothers of children with PKU. Recommendations: the specialist can educate the mother how to adapt by using coping strategies when caring child with PKU, especially those who have a positive family history and doing regular training about using coping strategies. | ||||
| Keywords | ||||
| Mothers; Children with Phenylketonuria; Quality of Life; strain; Coping Strategies | ||||
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