Effect of an Educational Program on Self-Care Management for Patients with Sickle Cell Disease | ||||
| Journal of Nursing Science Benha University | ||||
| Article 9, Volume 2, Issue 1, January 2021, Page 124-146 PDF (1.25 MB) | ||||
| Document Type: Scientific peer reviewed journal | ||||
| DOI: 10.21608/jnsbu.2021.159649 | ||||
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| Authors | ||||
| Eman Abd Elmoety Mohammed* 1; Marwa Moustafa Hegazy2; Heba Abdel-Kader Ali3; Nehal Mahmoud Abu El-fadl4 | ||||
| 1Medical Surgical Nursing, Faculty of Nursing, Al Azhar University, Egypt | ||||
| 2Medical Surgical Nursing, Faculty of Nursing, Benha University, Egypt | ||||
| 3Medical Surgical Nursing, Faculty of Nursing, Benha University, Egypt | ||||
| 4Medical Surgical Nursing. Faculty of Nursing, Benha University, Egypt | ||||
| Abstract | ||||
| Background: Sickle cell disease (SCD) is a chronic genetic disease, which causes many complications through the patient's life; self-care is an important aspect of managing a chronic disease. In SCD, self-care contributes to patients' pain management and prevention of pain crisis. The aim of this study was to evaluate the effect of an educational program on self-care management for patients with sickle cell disease, Design: Quasi-experimental research design. Setting: this study was conducted in hematology departments at Benha University Hospital & Nasser Institute. Study subjects: A convenient sample of all available patients (n=50) were included in this study. Data collection tools: two interview questionnaires: 1) Patients assessment questionnaire includes (socio demographic data, medical history & patients' knowledge about SCD. 2) Routine Self- Care Questionnaire includes (A-Jenerette Self-care Assessment questionnaire & BSickle Cell Self-Efficacy Scale questionnaire). Results of the study revealed that: The majority of patients had unsatisfactory knowledge scores pre-program implementation, when more than two thirds of them had satisfactory knowledge score immediately post program implementation and nearly two thirds of them had satisfactory knowledge three months follow-up the program, concerning self-care, the majority of studied patients had unsatisfactory total self-care scores at preprogram implementation, while nearly three quarters of them had satisfactory total self-care scores one month post program implementation and nearly two thirds of them had satisfactory total selfcare score three months follow-up program implementation and regarding self-efficacy, the majority of studied patients had unsatisfactory self-efficacy scores at pre-program implementation, while nearly three quarters of them had satisfactory scores one month post program implementation and more than two thirds of them had satisfactory self-efficacy follow-up program implementation. Conclusion: The study concluded that there were statistically significant improvement in patients’ knowledge, self-care & self-efficacy post & follow-up educational program implementation. Recommendations: This study recommended that performing continuous monitoring, evaluating self-care practice for sickle cell disease patients for early detecting and solving problem. Researchers should implementing further educational programs for improving patients’ self-care and self-efficacy skills. | ||||
| Keywords | ||||
| Educational program; patients; Self-care; Sickle cell disease | ||||
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