Assessment of Lifestyle for Children with Phenylketonuria | ||||
| Egyptian Journal of Health Care | ||||
| Article 71, Volume 12, Issue 4, December 2021, Page 1057-1071 PDF (234.63 K) | ||||
| Document Type: Original Article | ||||
| DOI: 10.21608/ejhc.2021.205496 | ||||
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| Authors | ||||
| Sohair Roby Abd Alghafar1; Iman Ibrahim Abd Al-Moniem2; Safaa Fouad Draz3 | ||||
| 1BSc. in Nursing - Faculty of Nursing - Ain Shams University-Cairo-Egypt. | ||||
| 2Professor of Pediatric Nursing - Faculty of Nursing - Ain Shams University-Cairo-Egypt. | ||||
| 3Assistant Professor of Pediatric Nursing- Faculty of Nursing - Ain Shams University-Cairo-Egypt. | ||||
| Abstract | ||||
| Background: Phenylketonuria is an autosomal recessive disorder characterized by accumulation of phenylalanine in blood and body fluids that is caused by defective Phe hydroxylase activity. Aim of the present study is to assess lifestyle for children with phenylketonuria. Design: A descriptive design was used in this study. Setting: conducted at genetic counseling clinic in basic health care unit at El Fayoum affiliated to Ministry of Health (MOH). Sample: A purposive sample included all children with Phenylketonuria composed of 79 children accompanied by their mothers. Tools: structural interviewing questionnaire to assess demographic characteristics, and medical history, and lifestyle assessment Questionnaire for children with PKU to identify current strengths of child’s health, and risk factors. Results: (74.7%) of families were discovered the disease by Ministry of Health screening programs. (92.4%) of children were made regular follow up. (78.5%) of children had follow up visits once monthly. 89.9% of children were not Taking breast feeding 62% of mothers had inadequate knowledge about the relation between breast feeding and the disease process. Conclusion: There is a statistically significant correlation between compliance with the prescribed diet and growth problems. There is no statistically significant correlation between compliance with the prescribed diet and sleep problems. Recommendations: The current study recommended Periodic assessment of Children affected commitment to prescribed diet. Increase mother knowledge about the importance of prescribed diet for children with Phenylketonuria | ||||
| Keywords | ||||
| life style; children; Phenylketonuria | ||||
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