Mothers, Role Regarding Care of their Children Suffering from Osteogenesis Imperfecta | ||||
| Egyptian Journal of Health Care | ||||
| Article 60, Volume 13, Issue 2, June 2022, Page 820-829 PDF (508.39 K) | ||||
| Document Type: Original Article | ||||
| DOI: 10.21608/ejhc.2022.234463 | ||||
 View on SCiNiTO | ||||
| Authors | ||||
| Nora Mahmoud Ahmed El-Marzky* ; Sabah Saad Alsharkawi; Randa Mohamed Adly; Salma Elsayed Hassan | ||||
| Professors of pediatric Nursing, Faculty of Nursing, Ain Shams University-Cairo-Egypt. | ||||
| Abstract | ||||
| Background: Osteogenesis Imperfecta (OI) known as brittle bone disease, it is a genetic disorder of connective tissue which is characterized by bones that fracture easily from little or no apparent trauma. However, the multiple fractures will lead to progressive bone deformities, short stature and restricted mobility. This study aimed to assess mothers, role regarding care of their children suffering from OI. Research design: A descriptive design was utilized. Setting: The study was conducted at Genetic Department in Children Hospital affiliated to Ain Shams University Hospitals. Subjects consisted of 80 mothers accompanying their children suffering from OI. Tools: Data were collected through using. Tool (1): Interviewing questionnaire tool it was consisted of: Part 1: Characteristics of the study subjects. Part 2: Knowledge of mothers regarding to OI. Tool (2): mothers, reported practices regarding to care of their children suffering from OI. The results of the study revealed that, the mean age of studied mothers was 32.82±5.3 years; the mean age of the studied children was 8.14±5.71years. Majority of studied mothers had negative family history of OI. Also, less than two thirds of them had consanguinity relation. Conclusion: This study concluded that less than half of the studied mothers had satisfactory knowledge and less than half of them had adequate reported practices regarding to care of their children suffering from OI. Recommendation: Educational program intervention should be conducted for mothers of children with OI to raise their level of knowledge and practicesregarding caring of their children with OI. | ||||
| Keywords | ||||
| Mothersrole; Children; OsteogenesisImperfecta | ||||
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