Knowledge of Children and Adolescents with Beta Thalassemia Major about their Disease: An Assessment Study | ||||
| Egyptian Journal of Health Care | ||||
| Article 24, Volume 13, Issue 4, December 2022, Page 313-322 PDF (293.81 K) | ||||
| Document Type: Original Article | ||||
| DOI: 10.21608/ejhc.2022.260890 | ||||
 View on SCiNiTO | ||||
| Authors | ||||
| Rahma Elsayed Abdel Aziz1; Safy Salah Eldin AlRafay1; Randa M. Matter* 2; Salma El Sayed Hassan1 | ||||
| 1Department of Pediatric Nursing, Faculty of Nursing, Ain Shams University | ||||
| 2Department of Pediatric, Faculty of Medicine, Ain Shams University | ||||
| Abstract | ||||
| Background: Beta-thalassemia major is the most common hemoglobin disorder in the world. Assessing the knowledge of the children and adolescents regarding a beta- thalassemia major is important because helps to avoid complications. This study aimed to assess knowledge of children ß-TM about their disease. Design: Descriptive exploratory design. Settings: The study conducted at Hematology Outpatient Clinics and inpatients word at Children’s Hospital affiliated to Ain Shams University. Sampling: A purposive sample comprised of 80 children with beta thalassemia major. Tools: Part 1: Designed questionnaire. Part 2: History of studied children regarding beta-thalassemia major. Part 3: Knowledge of the children regarding beta-thalassemia major. Part 4: Evaluating informational needs of studied children about beta-thalassemia major. Results: Current study revealed that the mean age of studied children was 14.25 ± 2.8 years and slightly more than half of them were female, about more than half of studied children had unsatisfactory knowledge about beta-thalassemia major. Conclusion: Current study revealed that more than half of the studied children were had unsatisfactory knowledge regarding beta-thalassemia major. Recommendation: Provide continuous health education to children with beta- thalassemia major regarding their disease. | ||||
| Keywords | ||||
| Beta thalassemia major; Children; Adolescents; Knowledge | ||||
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