Effect of Educational Program on Mothers’ Practices towards Caring for their Children Having Phenylketonuria
Khalil Ibrahim, A., Amin Mohamed, E., Salah Eldin AlRafay, S., Ali Khalifa, O. (2023). Effect of Educational Program on Mothers’ Practices towards Caring for their Children Having Phenylketonuria. EKB Journal Management System, 14(2), 172-182. doi: 10.21608/ejhc.2023.294233
Amira Khalil Ibrahim; Eman Amin Mohamed; Safy Salah Eldin AlRafay; Ola Ali Khalifa. "Effect of Educational Program on Mothers’ Practices towards Caring for their Children Having Phenylketonuria". EKB Journal Management System, 14, 2, 2023, 172-182. doi: 10.21608/ejhc.2023.294233
Khalil Ibrahim, A., Amin Mohamed, E., Salah Eldin AlRafay, S., Ali Khalifa, O. (2023). 'Effect of Educational Program on Mothers’ Practices towards Caring for their Children Having Phenylketonuria', EKB Journal Management System, 14(2), pp. 172-182. doi: 10.21608/ejhc.2023.294233
Khalil Ibrahim, A., Amin Mohamed, E., Salah Eldin AlRafay, S., Ali Khalifa, O. Effect of Educational Program on Mothers’ Practices towards Caring for their Children Having Phenylketonuria. EKB Journal Management System, 2023; 14(2): 172-182. doi: 10.21608/ejhc.2023.294233

Effect of Educational Program on Mothers’ Practices towards Caring for their Children Having Phenylketonuria

Egyptian Journal of Health Care
Article 14, Volume 14, Issue 2, June 2023, Page 172-182  XML PDF (422.37 K)
Document Type: Original Article
DOI: 10.21608/ejhc.2023.294233
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Authors
Amira Khalil Ibrahim1; Eman Amin Mohamed1; Safy Salah Eldin AlRafay1; Ola Ali Khalifa* 2
1Department of Pediatric Nursing, Faculty of Nursing, Ain Shams University.
2Medical Genetics Department, Faculty of Medicine, Ain Shams University
Abstract
 Background: Phenylketonuria (PKU) is an autosomal recessive inborn error of phenylalanine metabolism resulting from deficiency of phenylalanine hydroxylase (PAH). Aim: The objective of this study was to evaluate effect of educational program on mothers’ knowledge, practices and behavior towards caring for their children having Phenylketonuria. Methods: A pre/post quasi experimental study was conducted on 128 mothers. Settings: The study conducted at the Metabolic Clinic, Department of Medical Genetics, Faculty of Medicine, Ain Shams University. Tool: Pre designed interviewing questionnaire consists of 4 parts: Part 1: Personal characteristics of mothers. Part 2: Mothers’ knowledge about PKU. Part 3: Mothers’ Reported Practice about PKU. Part 4: Mothers Reported Behavior. Results: A difference was highly positive association between knowledge, reported practice, & reported behavior (.674 & .398) respectively. In addition, the highest positively association with total self-reported practice and reported behavior with r (.608). Conclusion: Current study concluded that an educational program affecting positively on mother's knowledge and practices and behavior. Recommendation: Provide continuous health education to mothers and their children with PKU to improve their adherence to therapeutic regimen 
Keywords
phenylketonuria; mothers; practice; educational program
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