Knowledge, Attitudes and Practices of Mothers regarding their Children with Spinal Muscular Atrophy
Hussien Ghoniem, S., Abd El-Gawad Abd El-Megeed, H., Elahmady Mohamed, A., Gamal Eldein Ibraheim, S. (2023). Knowledge, Attitudes and Practices of Mothers regarding their Children with Spinal Muscular Atrophy. EKB Journal Management System, 4(2), 1043-1055. doi: 10.21608/jnsbu.2023.310952
Sabrien Hussien Ghoniem; Hanaa Abd El-Gawad Abd El-Megeed; Ahlam Elahmady Mohamed; Shimaa Gamal Eldein Ibraheim. "Knowledge, Attitudes and Practices of Mothers regarding their Children with Spinal Muscular Atrophy". EKB Journal Management System, 4, 2, 2023, 1043-1055. doi: 10.21608/jnsbu.2023.310952
Hussien Ghoniem, S., Abd El-Gawad Abd El-Megeed, H., Elahmady Mohamed, A., Gamal Eldein Ibraheim, S. (2023). 'Knowledge, Attitudes and Practices of Mothers regarding their Children with Spinal Muscular Atrophy', EKB Journal Management System, 4(2), pp. 1043-1055. doi: 10.21608/jnsbu.2023.310952
Hussien Ghoniem, S., Abd El-Gawad Abd El-Megeed, H., Elahmady Mohamed, A., Gamal Eldein Ibraheim, S. Knowledge, Attitudes and Practices of Mothers regarding their Children with Spinal Muscular Atrophy. EKB Journal Management System, 2023; 4(2): 1043-1055. doi: 10.21608/jnsbu.2023.310952

Knowledge, Attitudes and Practices of Mothers regarding their Children with Spinal Muscular Atrophy

Journal of Nursing Science Benha University
Volume 4, Issue 2, July 2023, Page 1043-1055  XML PDF (459.39 K)
Document Type: Scientific peer reviewed journal
DOI: 10.21608/jnsbu.2023.310952
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Authors
Sabrien Hussien Ghoniem* 1; Hanaa Abd El-Gawad Abd El-Megeed2; Ahlam Elahmady Mohamed3; Shimaa Gamal Eldein Ibraheim4
1A Member of the development team at the Directorate of Health Affairs in Gharbia
2Professor of Community Health Nursing, Faculty of Nursing, Benha University
3Assistant Professor of Community Health Nursing, Faculty of Nursing, Benha University
4Lecturer of Community Health Nursing, Faculty of Nursing, Benha University.
Abstract
Background: Spinal Muscular Atrophy (SMA) is a genetic disease affecting the central nervous system and voluntary muscle movement (skeletal muscle). This study aimed: Was to assess knowledge, attitudes and practices of mothers regarding their children with spinal muscular atrophy. Research design: A descriptive research design was used in carrying out this study. Setting: The study was conducted  at Hassan Awad Health Insurance Clinic in Banha City. Sample: Purposive sample  of 100  mothers and their children with SMA. Tools: Three tools were used. Tool 1: Consisted two parts: Part (1): An interviewing questionnaire consisted to assess  socio-demographic data of studied sample, and personal characteristics of preschool children with spinal muscular atrophy. Part (2) Mothers` knowledge regarding SMA. Tool (II) Mothers` attitude likert scale. Tool (III): Reported practices of mother regarding their children with SMA. Results: 36.0% of the children with SMA were  aged from 1< 3 years . 93.0% of studied children had motor problems of difficult  standing. 60.0 % of mothers had poor total level of knowledge regarding spinal muscular atrophy,66.0 % of them had negative attitude  and 53.0 % of studied mothers had unsatisfactory total reported practices. Conclusion: Most of studied children had motor problems of difficulty standing, There were statistically significant correlation between studied mother`s total knowledge, total attitude and total reported practices. Recommendations: Health education program should be given for mothers about SMA to enhance their knowledge, attitude and practices regarding disease.         
Keywords
children; Mothers` knowledge; Mothers` attitude; Mothers` practices; Spinal Muscular Atrophy (SMA)
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