Assessment of Mothers Care toward their Children having Phenylketonuria
A.K., E., S.S., A., O.A., K., I.A, M. (2020). Assessment of Mothers Care toward their Children having Phenylketonuria. EKB Journal Management System, 11(2), 241-254. doi: 10.21608/ejhc.2020.95138
Elsayed, A.K.; AlRafay, S.S.; Khalifa, O.A.; Mohamed, I.A. "Assessment of Mothers Care toward their Children having Phenylketonuria". EKB Journal Management System, 11, 2, 2020, 241-254. doi: 10.21608/ejhc.2020.95138
A.K., E., S.S., A., O.A., K., I.A, M. (2020). 'Assessment of Mothers Care toward their Children having Phenylketonuria', EKB Journal Management System, 11(2), pp. 241-254. doi: 10.21608/ejhc.2020.95138
A.K., E., S.S., A., O.A., K., I.A, M. Assessment of Mothers Care toward their Children having Phenylketonuria. EKB Journal Management System, 2020; 11(2): 241-254. doi: 10.21608/ejhc.2020.95138

Assessment of Mothers Care toward their Children having Phenylketonuria

Egyptian Journal of Health Care
Article 17, Volume 11, Issue 2, June 2020, Page 241-254  XML PDF (357.51 K)
Document Type: Original Article
DOI: 10.21608/ejhc.2020.95138
View on SCiNiTO View on SCiNiTO
Authors
Elsayed, A.K.1; AlRafay, S.S.2; Khalifa, O.A.3; Mohamed, I.A2
1B.Sc. Nursing Sciences
2Pediatric Nursing Department, Faculty of Nursing Ain Shams University
3Clinical Genetics, Genetics Unit Faculty of Medicine
Abstract
Phenylketoneuria is an autosomal recessive disorder and cause irreversible brain
damage if untreated. Aim: This study aimed to assess mothers care for children having
Phenylketoneuria through assessing the mothers’ knowledge, self-reported practice and
coping patterns toward their children with PKU. Design: A descriptive study. Sampling: A
purposive sample comprised of 94 mothers accompying children with PKU. Setting: This
study was conducted at Specialized Genetic Outpatient Clinic, Children’s Hospital affiliated
to Ain Shams University Hospital. Data collection tool: 1st tool: Interviewing Questionnaire
Format to assess socio- demographic data of the study children and their mothers, medical
history of children with PKU, mothers’ knowledge about PKU, assessment of children’
health needs and problems, 2 nd tool: Mothers Reported Practice Format related to care of
their children with PKU, as diet management and follow up for growth and development as
weight, height. 3 rd tool: Psychometric Assessment for mothers as Coping Pattern Scale, Beck
Depression Inventory and State-Trait Anxiety Inventory. Results: This study revealed that
above half of studied children’s were females, it ranged from birth to more than 9 years with
a mean age of 4.45 ± 2.07 years, the mean age of studied mothers was (32.26 ± 4.2 years),
Conclusion: about more than half of mothers had poor knowledge about PKU. As well more
than one tenth of the mothers had poor total reported practice. There is a significant
correlation between mothers’ knowledge, practice and their caring roles, anxiety and
depression. Recommendation: Continuous health teaching to children and their caregivers
regarding PKU.
Keywords
Phenylketoneuria; Health Needs; Problems; Dietary Management; Psychometric Assessment
Statistics
Article View: 196
PDF Download: 170